A week ago, we made our way to the Emergency Room. Prince Edward Island and the friends we made there seem so very far away now. The days are running together and blending into one long endless stream of medical routines. I’m glad they write the day of the week on the white board in his hospital room; I frequently have to check it to verify that unit of time.
I’m so weary and sleep deprived that I’m not even sure I should be attempting to write blog posts, vocabulary words are scarce and I don’t know if I’m even making sense, but the Spirit urges me on. I want you to be included in the journey He’s taking us on and to experience His goodness with us.
They moved us to a different floor of the hospital last night. The seventh floor. That number feels good. Seven floors above ground. I like it. But as they were wheeling LeRoy away from the fifth floor last night, the nurses were saying things like, “Oh, no, you can’t take Mr. Wagner, he’s our favorite patient!” “We will miss you, Mr. Wagner!”
The new room was smaller and cramped, but it had a comfortable chair that I could pull close beside LeRoy. The poor soul next door wailed through the night. She sounds tormented. LeRoy couldn’t sleep at all. She was still calling out all day, my heart aches for her.
This is an excellent medical facility, but our new room developed a problem. The toilet wouldn’t flush. A working toilet is pretty essential, but especially for someone who is ill, on a walker, and not able to navigate very far. The nurse called for maintenance people to come and look into the problem. She called repeatedly, but no one ever came. And I’m so glad they didn’t. That precious nurse, from Nepal, she went and found us a new room. Not any old ordinary room. No, she put us in a room that feels like a luxury penthouse suite.
The new room is a double size, big enough for two patients, but with only one bed, so the other half of the room has a large sitting area. There are two couches and a wall full of large windows. We’re high above the city with a beautiful view of the skyline. I cannot stop praising God for His goodness in blessing us with such an incredible hospital “home.” There was plenty of room for me to play with the girls during their visit to Poppy. Esther beat me at checkers.
We’ve met so many beautiful people here from all across the globe. The Lord is bringing the world to LeRoy’s bedside and he’s engaging each individual in personal conversation that conveys that he cares for them. He freely shares the love of Christ and the staff loves him for it.
But the Plasma Exchange Treatments are leaving LeRoy weak and depleted. Late yesterday afternoon, the Plasma Exchange (PLEX) team came by to tell us they determined they needed to do his next exchange this morning rather than doing another one yesterday. It has a lot to do with blood levels, coagulants, numbers, big words like fibrinogen, but especially the fact that the scheduling and timing of this procedure matters a lot.
We certainly don’t understand it all, but are so grateful for these doctors and their care, but especially grateful we are in the Father’s hands.
They gave us some semi-encouraging news when they told us that they’ve seen some amazing recoveries take place: paraplegics regain their ability to walk! But they also told us that PLEX is not a permanent solution, it’s just temporary, and additional measures/meds/treatments have to continue.
At this point, they’ve still not determined what they’re dealing with. It is amazing with all the excellent medical personnel involved, Neuro doctors, GI Doctors, Infectious Disease doctors, PLEX team . . . numerous tests using his blood, spinal fluid, and skin samples . . . they still haven’t been able to diagnose what is attacking my man. They see evidence of various things it could be: rare Infectious diseases, rare autoimmune diseases, but do not have a conclusion yet. It should not surprise those of us who know him! We’ve known all along how special he is!
He is holding up well, although after each PLEX treatment, he’s extremely depleted. He gave us quite a scare the night after his first treatment; he was so weak he couldn’t open his eyes, his oxygen and blood pressure dropped quite low. The nurse alerted his doctors and one was at his bedside in minutes, thoroughly checking him over at 3:30 am. But yesterday he was able to have a break and began regaining strength and we’re so grateful.
1. First PLEX treatment seems to be having some positive effects.
2. Attentive medical crew.
3. Our son, his wife, and their girls arrived safely and it made their Poppy very happy!
4. We are blown away by how many people are praying for us, pouring out their love and support for us! It’s touched us deeply. Tears are flowing often. Grateful.
1. Our daughter, who lives more than a thousand miles away, is expecting her fourth little one and thought she was going into early labor last night–please pray for her and baby.
2. This series of PLEX procedures: protection over LeRoy, that his veins will remain strong to tolerate the procedures and he will not have to receive the frozen plasma but that his plasma levels will hold up!
3. Asking God for a definitive diagnosis and course of action.
4. That God will use us in whatever way that will most please and glorify Him.
We live in confident hope, no matter what, because of God’s goodness and the proven reality of His power displayed through the resurrection:
[box]“I saw the Lord always before me, for he is at my right hand that I may not be shaken; therefore my heart was glad, and my tongue rejoiced; my flesh also will dwell in hope. For you will not abandon my soul to Hades, or let your Holy One see corruption.
You have made known to me the paths of life; You will make me full of gladness with your presence.” (Acts 2:25–28)[/box]