Not exactly the Red Sea, but it feels a lot like it. Disappointing, but not surprising news. We spent much of last week in Dallas for appointments and tests. LeRoy’s MRI showed that there has been virtually no change in the spinal cord lesion, which is why he is still having so much pain.
These days, I’ve been spending time in Psalm 106:
[box]Praise the Lord!
Oh give thanks to the Lord, for he is good,
for his steadfast love endures forever!
Who can utter the mighty deeds of the Lord,
or declare all his praise? (vv. 1–2)[/box]
Who can declare His praise? Those who’ve experienced His work in their lives. Those who’ve been rescued by His mercy and grace. How can we help but declare His mighty deeds?
[box]Our fathers, when they were in Egypt, did not consider your wondrous works; they did not remember the abundance of your steadfast love, but rebelled by the sea, at the Red Sea.
Yet he saved them for his name’s sake, that he might make known his mighty power. (vv. 7–8)[/box]
That’s the point of His mighty works—that His power can be seen and known. I’ve been asking myself: “How will I respond to the Red Sea moments, should they come?” When faced with certain death—a vicious army breathing down their necks and a vast body of water as their only escape route—God’s people rebelled.
They forgot His steadfast love.
I don’t want to do that. I pray His steadfast love will stay on my heart and mind continually. That is a sure protection against rebellion.
[box]He rebuked the Red Sea, and it became dry, and he led them through the deep as through a desert. So he saved them from the hand of the foe and redeemed them from the power of the enemy.
And the waters covered their adversaries; not one of them was left.
Then they believed his words; they sang his praise. (vv. 9–12)[/box]
I find it significant, the phrase “Then they believed his words . . .” After the deliverance, then they believed. But hadn’t they just experienced a ton of miracles? What about the rescue from Egypt? What about the protection through the plagues? What about the incredible work of removing them from a life of slavery? Was all of that not enough to ensure their belief and trust in God’s faithfulness?
Will we be faithful to still believe God’s Word when faced with Red Sea moments? Will we remember His steadfast love and faithfulness?
We were hopeful, and praying, that the aggressive steroid treatment would’ve affected or eradicated the final spinal cord lesion. The neurology team is telling us that Remicade infusions would be the best treatment option to deal with this, but it may be difficult for us to get because of our “no insurance” status.
They presented a rosy and hopeful future if LeRoy could receive the infusions, telling us they expect it to bring full recovery, possibly leaving some scar tissue which would probably cause life-long pain, but at a much lower level than he now experiences.
It’s like, we can see the promised land in the distance, but between us and there, lies a vast sea to cross—while the debilitating illness is pressing in—with nowhere to turn but moving into the wide open sea.
We had a meeting with a nice gentleman from the financial aid department for the infusion center to see if we can be approved for LeRoy to receive the Remicaide infusions, otherwise he’ll be put on a less aggressive treatment plan. But we received disappointing news there, too. We will not be able to get infusions from them. Because we don’t have “regular insurance” (we’re part of a Christian health care co-op), they will not accept LeRoy as a patient. The treatment is extremely expensive.
Even if we go directly to the manufacturer of Remicade for assistance in their “free drug program,” we will need to find an infusion center somewhere that will do that. UT Southwestern is not an infusion center that participates in that program.
My persistent appeal for LeRoy to receive Remicade treatment went all the way up through the system until the VP of the infusion center called me. She explained that their “self pay” policy is only applicable to Texas residents and we cannot apply for that. They are working with LeRoy’s PCP (who’s been a faithful friend through this long journey) to find an infusion center in our state that provides the “free drug” program.
The most urgent need now is to get the treatment started because LeRoy’s condition will not improve at all until that happens and the longer his spinal cord is in this compromised condition, the greater danger he’s in, and the less effective the treatment will be.
You know how God’s chosen ones responded after He faithfully delivered them from their Red Sea moment? Psalm 106:13 provides the tragic answer.
It’s instructive to my own heart:
[box]“But they soon forgot his works;
they did not wait for his counsel.”[/box]
My prayer is that we will never forget His great works. We will remember them and talk of them, and no matter what, we will worship Him because He is worthy.
We’re at home now. LeRoy is still experiencing incredible pain. But Christmas music is playing, the fire is crackling, and our time in the Word together is rich. We’re trusting God’s perfect timing and recounting all the ways He has been, and is, faithful. We don’t want to move ahead of His counsel, and for sure we want to remember all He’s done.
We pray we’ll faithfully share with others His good works.
We are so grateful for your prayers, love, and support. Could you pray for LeRoy’s doctor to be able to locate an infusion center that will take us? That he’ll get a spot (soon) on the schedule for the infusion treatment? And if that is not God’s best for him, that we will be faithful to glorify the Father—no matter what. That we will not forget His works or rush past the “waiting” for His counsel.
We know God is faithful and His timing is perfect.